Monday 29th June 2020 – Day One

09.30 – 10.00 Registration and refreshments
Morning Chair: Sharon Hudson
10.00 – 10.10 Overview and Purpose

EAPC Task Force expert position statement Hospice UK document

Dr Purushottam Desai, Consultant Cardiologist, UHB, Queen Elizabeth Hospital, Birmingham and Sharon Hudson

10.10 – 10.40 In conversation – how far have we come

Prof Miriam Johnson, Professor of Palliative Medicine, Director of the Wolfson Palliative Care Research Centre, University of Hull and Prof Richard Lehman, Applied Health Research, University of Birmingham

10.40 – 11.00 Research priorities: where are we now

Rachel Johnson, GP and Health Services Researcher

11.00 – 11.30 Identification: SPICT and Holistic assessment

Dr Jon Tomas, Palliative Consultant, UHB

11.30 – 12.00 Refreshment break
12.00 – 12.30 Panel discussion:

ACP research outcomes and clinical practicalities

(Consultation, Communication Care Planning, ACP, Respect)

Molly Bird, Palliative Consultant, Birmingham St Mary’s Hospice / UHB

12.30 – 13.00 Assessment: HF Needs assessment

Prof Miriam Johnson, Professor of Palliative Medicine, Director of the Wolfson Palliative Care Research Centre, University of Hull

13.00 – 13.45 Lunch
Afternoon Chair: Camilla Barrow, Clinical Education Lead, Birmingham St Mary’s Hospice
13.45 – 14.45 Non – Pharmacological Breathlessness Management

Alexandra Hough, Physiotherapist & Author ‘Hough’s Cardiorespiratory Care’

14.45 – 15.10 Refreshment break
15.10 – 16.30 Workshops: Symptom Management (Workshops are 40 minutes each. Delegates choose one option, either Workshop 1 or 2)
Workshop 1 A: Devices role and deactivation

Nick Irwin

Head of Cardiac Implantable Devices – Nurse

University Hospitals Birmingham

B: Optimal medicines management and use of opioids in breathlessness

Prof Miriam Johnson, Professor of Palliative Medicine, Director of the Wolfson Palliative Care Research Centre, University of Hull and Dr Purushottam Desai, Consultant Cardiologist, UHB, Queen Elizabeth Hospital, Birmingham

Workshop 2 C: Congenital heart disease

Sarah Bowater

Consultant cardiologist

University Hospitals Birmingham

D: Management of oedema including SC furosemide

Helen Kelly – Heart Failure Specialist Nurse, University Hospital, Birmingham.

16.30 – 17.00 Panel Discussion: Ask It Baskets

Prof Miriam Johnson, Molly Bird and Dr Purushottam Desai, Consultant Cardiologist, UHB, Queen Elizabeth Hospital, Birmingham

17.00 Close

Tuesday 30th June 2020 – Day Two

08.30 – 09.00 Registration and refreshments
Morning Chair: Molly Bird
09.00 – 09.05 Introduction and Plan for the Day

Molly Bird

09.10 – 10.30 Arts/Spirituality/Theatre session
10.30 – 11.00 Spirituality in long-term conditions

Helen Cotter

11.00 – 11.30 Refreshment break
11.30 – 12.30 Tommy Whitelaw, A Carer’s Story
Tommy on Tour
12.30 – 13.15 Lunch
Afternoon Chair: Jon Tomas
13.15 – 13.45 Singing for Breathing Choir
13.45 – 15.00 Workshops (30 minutes each. Delegates choose one option, either Workshop 3 or 4)
Workshop 3 A: Rehabilitation

– Fatigue and Anorexia

– Rehabilitation in Palliative Care

– Sexuality

– Cardiac rehab

B: Good Practice models of Integrated Care

3 x models: community/hospice, primary care, hospital

Jon Tomas, Palliative Care Consultant , UHB

Helen Kelly, Heart Failure Specialist Nurse  UHB

Compton Team

Workshop 4 C: Myth Busting
Natural Undertaking

D: Primary care and the long-term plan
Vic Meynell, British Heart Foundation

15.00 – 15.45 Ethics and Complexity

Dr James Beattie, Consultant Cardiologist, Cicely Saunders Institute, King’s College, London, UK

15.45 – 16.00 Panel discussion: Ask It Basket and evaluation
16.00 Close

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